2018 Oklahoma City ASAP Syringomyelia and Chiari Walk & Roll for a Cure
Raising funds for research, education and awareness. Providing support and programs for the CM/SM community since 1988.
|WHAT: Syringomyelia & Chiari Walk|
WHEN: September 22, 2018
TIME: Registration 10:00 am
Photos 10:30 am
HOPE Balloon Release 11:00 am
Walk begins 11:15 am
WHERE: DC on Film Row
609 W Sheridan Ave
Oklahoma City, Oklahoma
My name is Ann Humphries and 2 of my 5 children have Chiari I Malformation and related conditions as well as a niece and nephew. I was first introduced to Chiari Malformation when my nephew was diagnosed and he actually traveled to receive the proper care. Since then, my niece and my two oldest daughters have met this monster. Jazmin had decompression surgery her 8th grade year in March 2012 and her sister, Alexia, has not yet had decompression surgery. They both have related conditions as well ~ they both have Scoliosis and Jazmin has Brittle Cornea Syndrome (a type of Ehlers Danlos Syndrome), Basilar Invagination and more. I began hosting our local support groups after my amazing friend resigned from them. I enjoy helping people, giving people HOPE and bringing awareness to these monster conditions. Please join me in giving HOPE by fundraising, attending the walk and spreading awareness!
We are holding a fundraising event to benefit American Syringomyelia and Chiari Alliance Project (a.k.a ASAP). ASAP is the oldest organization of its kind supporting research, education, and awareness of these disorders.
Several fundraisers will be hosted prior to the walk including restaurants, painting and more! FUN will be had the day of the walk with activities, food, DJ, raffle items, door prizes and silent auctions! Appearances by special people and more!
NEW this year is the HOPE Balloon Release. Pre purchase a balloon in honor/remembrance of anyone of your choosing for just $5. This can be done by clicking the GIVE NOW button on the page and entering $5 or more OR give donation directly to Ann for the balloon. Balloons will be released prior to the start of the walk. Please contact Ann after donating via email at firstname.lastname@example.org or text at 405-698-9778. All donations for balloons must be made by Friday September 15, 2017.
To receive a walk t-shirt participants must register before September 1 and make a donation of $30 or more per person.
Special recognition will be giving to the following the day of the walk:
~ Largest registered group present
~ Most funds raised by an individual
~ Most funds raised by a group
~ All volunteers who help with the walk *I definitely couldn't do this without YOU!*
You can help others like Jazmin and her sister Alexia who are living with Chiari and/or Syringomyelia. Your time, donation and participation at our walk is invaluable. To find out information regarding our OKC ASAP Support Group, or if you have any questions, please contact Ann Humphries at 405-698-9778 or email@example.com.